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Steve Jacobsen
Profile
Steve Jacobsen is the founder of The FSHD Society, which was founded in 1991.
Former positions of Steve Jacobsen
Companies | Position | End |
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The FSHD Society
![]() The FSHD Society Investment Trusts/Mutual FundsMiscellaneous The FSHD Society is the world's largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD). The organization is based in Lexington, MA and was founded in 1991 by Daniel Paul Perez and Steve Jacobsen. The organization has been working for the past 32 years to accelerate the development of treatments and a cure for FSHD, which affects one million people worldwide. The FSHD Society offers a community of support, news, and information through its website. The FSHD Society has transformed the landscape for FSHD research and is committed to making sure that no one faces this disease alone. | Founder | - |
Experiences
Positions held
Linked companies
Private companies | 1 |
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The FSHD Society
![]() The FSHD Society Investment Trusts/Mutual FundsMiscellaneous The FSHD Society is the world's largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD). The organization is based in Lexington, MA and was founded in 1991 by Daniel Paul Perez and Steve Jacobsen. The organization has been working for the past 32 years to accelerate the development of treatments and a cure for FSHD, which affects one million people worldwide. The FSHD Society offers a community of support, news, and information through its website. The FSHD Society has transformed the landscape for FSHD research and is committed to making sure that no one faces this disease alone. | Miscellaneous |
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